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Patient/Carer Experience
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ESRF patients should receive care and support
which encourages inclusion of therapy into their overall
lifestyle. Treatment should be in comfortable and convenient
surroundings and delivered at times consistent with regaining
or maintaining employment and maximising rehabilitation
into society.
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ESRF patients should expect to access regular
HD, CAPD and outpatient review as close to their homes
as possible. Access to consultant time, nursing, dietetic,
social work, counselling advice and pharmacy support should
be equitable irrespective of place of residence or treatment.
For the majority, one-way travel time for these services
should be less than 30 minutes.
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HD centres should have parking, waiting
and changing areas appropriate for 'life-long' attendance.
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RRT patients with intercurrent problems
requiring hospitalisation should expect to be admitted
to single sex areas in dedicated nephrology wards staffed
by nurses trained in renal medicine and dialysis. Nephrology
beds should be expanded in line with the expansion of
dialysis stock so that the admission of a RRT patient
to an 'outlying'
ward is exceptional.
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Each patient should have a named nurse
responsible for assessment and planning
of care.
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Patients and carers, through their local
KPAs and the NKF, should expect to be involved in local
planning and the setting of Service Level Agreements and
to be co-opted onto provider planning committees, onto
renal sub groups of RSCGs and onto national initiatives
including the setting of Clinical Standards.
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Dialysis patients should be free to holiday
in the UK or overseas. This will require investment in
the health economies of popular UK destinations. It will
require the creation of facilities in all HD units for
temporary 'isolation' of patients returning from areas
overseas which are high risk for blood borne virus infections.
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